A permanent legacy for a life cut painfully short.
The first $250,000 donated to the WMRF will be leveraged 4 times!
1. The Mateffy family will match the first $250,000 raised, bringing those funds to $500,000.
2. That $500,000 will then be donated to the University of Wisconsin, where it will be matched by philanthropists John and Tashia Morgridge.
3. That final match will bring funds to $1,000,000! This $1,000,000 will endow the Wynne Mateffy Professorship of Peroxisomal Disorders, which will be a permanently endowed position at the University of Wisconsin - Madison. This endowment will generate $40,000 to $70,000 every year and fund research into peroxisomal disorders!
The professorship will launch with a critical project: to establish life-saving newborn screening in Wisconsin.
This is just the first task of the professorship. Thereafter, the University of Wisconsin, in conjunction with the board of the WMRF, will seek out the most important projects for this forgotten class of disease.
The goal is for the professorship to impact the future—25, 50 and 100 years down the line! Hopefully a cure will be found by then, and the focus can turn toward other disorders.
Click here for an update on the professorship
Dr. Mei Baker will be the first holder of the Wynne Mateffy Professorship of Peroxisomal Disorders! Dr. Baker is an award winning geneticist and newborn screening professional. She is currently co-director of the Wisconsin Newborn Screening Lab. Dr. Baker accompanied the Mateffy family to Omaha in July to attend the International Peroxisome Meeting. While there she met with the leading researchers and practitioners in PBD. Together they have identified newborn screening for PBD and X-linked ALD as her first project. This will be truly life saving work and we couldn't be more excited!
Beyond the Professorship
The second $250,000 donated will be leveraged 2 times via a matching donation from the Mateffy family!
This will fund research studies directly impacting PBDs. The Wynne Mateffy Research Foundation has partnered with the Global Foundation for Peroxisomal Disorders. Together we have identified several high-impact projects in need of immediate funding. We can't wait to get started!
It all starts with your donation!!!