How are donations spent?
Funds are directed to research projects focused on providing a better life for patients with PBD-ZSD. No funds are used for Wynne's medical bills. The foundation is setup in her honor.
Will you be fund raising every year?
No, we intend to do one large fundraising push in 2015. We may do additional drives as needed but we don't anticipate annual fundraising.
Is my donation tax deductible?
It should be. In the event it is not - we will return your donation. Our application for 501(c)(3) status is pending with the IRS. We anticipate a speedy approval. If for any reason it is not approved - we will issue returns.
How does the Caitlin and Joshua Mateffy matching grant work?
Caiti and I will be matching the first $500,000.00 in donations in 2015. If you are interested in pledging further matching grants - please contact us here.